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Archives
- Ride London-Surrey 100 – August 2013
- South Downs Trekathon
- International Patient Conference
- Kings College Open Day
- Autumn Conference 2013
- Rachel and Kevin doing an Ironman
- Matthew Binns – The 3 Big Ones – Fundraising in 2012
- Running for Porphyria research
- Open Committee Meeting
- Autumn Conference 2012 in Cambridge
- Darnley Trail Challenge Fundraising Walk – Sunday 4th September 2011
- Hospital Open Day – June 2012
- Viewing this site
- National Porphyria Week
- AGM and Autumn Conference – 10 Sept 2011
- International Patient Support Conference
- International Patient Support Conference
- Open Committee meeting
- BPA calendar
- Meeting in Cambridge
- Autumn Conference and AGM 2010
- Charity walk
- Our first meeting in Scotland
- Autumn Conference and AGM 2009
- Committee meeting
- Hospital Open Day June 2008
- Open Committee Meeting June 2008
- Autumn Conference and AGM 2008
- Warning of Scam
- Report on Questionnaire
- Porphyria questionnaire
- AGM and half-day conference
- Open committee meeting Aug 2007
- OPEN DAY at Kings College Hospital
- Open committee meeting Jan 2007
- International Porphyria meeting in Rome
- International Porphyria meeting in Rome
- AGM, 2006
- Open committee meeting June 2006
- OPEN DAY at Cardiff Hospital
- BPA’s new logo
- Open committee meeting Feb 2006
- AGM, 2005
- Open Day at Hope Hospital , June 1st 2005
- Open committee meeting June 2005
- Porphyria Awareness Day
- Open committee meeting March 2005
- AGM, 2004
- Notice of AGM, 2004
- Climb Conference, 16th April
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Author Archives: Webmaster
Darnley Trail Challenge Fundraising Walk – Sunday 4th September 2011
The Darnley Trail is a 10km circular walk through woodland and meadows in the Kent countryside. Our first walk in 2010 raised over £700 for the British Porphyria Association. This year we aim to raise £1000. The walk starts from … Continue reading
Posted in News
Hospital Open Day – June 2012
We are having a hospital open day at Salford Royal Hospital (traditionally known as Hope Hospital) on Saturday 23rd June, 2012. The hospital is a few miles west of the centre of Manchester, easily reached by bus and tram. It … Continue reading
Posted in Past Events
Viewing this site
If you can’t see the whole page and don’t want to use the scroll bars, with most browsers you can reduce the size by holding down the Ctrl key, and pressing the – (minus) key; or you can use the … Continue reading
Posted in Site Information
National Porphyria Week
29th May – 4th June 2011 National Porphyria Week was initiated several years ago by one of our ‘sister’ organisations in America and we decided that it would be a good way for the British Porphyria Association to help raise … Continue reading
Posted in Past Events
AGM and Autumn Conference – 10 Sept 2011
The BPA is holding its AGM and Autumn Conference in Shirley, Birmingham, on Saturday 10th September, 2011. It is at Shirley Methodist Church, about 3 miles south of the centre of Birmingham, on the A34. It is 2 ½ miles (10 minutes) … Continue reading
Posted in Conferences
International Patient Support Conference
The British Porphyria Association (BPA) organised an International Patient Day on Thursday 14 April 2011. The day ran from 0900 to 1530 and was held at The ATRiuM in Cardiff. The patient day included clinical presentations from doctors, patient experience presentations … Continue reading
Posted in Past Events
International Patient Support Conference
The British Porphyria Association (BPA) organised an International Patient Day which was held on Thursday 14 April 2011. The day ran from 0900 to 1530 and was held at The ATRiuM in Cardiff. The patient day included clinical presentations from doctors, patient experience … Continue reading
Posted in Conferences, News
Open Committee meeting
We held an open committee meeting in Manchester, at the NOWGEN centre, on Saturday afternoon, 19th March. Any members are welcome to come and talk to the committee at any of these events. If you want to come, email or … Continue reading
Posted in News
BPA calendar
We have produced a BPA calendar for 2011. As announced in our newsletter, we held a competition for photos for this calendar. It can be obtained by writing to Karen Harris – address below, or email helpline@porphyria.org.uk. The cost is … Continue reading
Posted in News
Meeting in Cambridge
We held a conference at Sydney Sussex College in Cambridge on 12th June, 2010. There were talks by porphyria experts from Addenbrookes Hospital, a question and answer session, and a chance to meet both the experts and other porphyria sufferers.
Posted in Past Events