Category Archives: Past Events

We are holding an open committee meeting, in Doncaster in March. It is on Saturday, 10th March 2012, at 2pm, in Scawsby Comunity Centre, Barnsley Rd, Scawsby, Doncaster. Any BPA member is invited to join us.  

We are having a hospital open day at Salford Royal Hospital (traditionally known as Hope Hospital) on Saturday  23rd  June, 2012. The hospital is a few miles west of the centre of Manchester, easily reached by bus and tram. It … Continue reading →

29th May – 4th June 2011 National Porphyria Week was initiated several years ago by one of our ‘sister’ organisations in America and we decided that it would be a good way for the British Porphyria Association to help raise … Continue reading →

The British Porphyria Association (BPA) organised an International Patient Day on Thursday 14 April 2011. The day ran from 0900 to 1530 and was held at The ATRiuM in Cardiff. The patient day included clinical presentations from doctors, patient experience presentations … Continue reading →

We held a conference at Sydney Sussex College in Cambridge on 12th June, 2010. There were talks by porphyria experts from Addenbrookes Hospital, a question and answer session, and a chance to meet both the experts and other porphyria sufferers.

One of our members organised a sponsored 10 km walk for the BPA. It was held near Gravesend in Kent, on 16th May, 2010. She is organising another sponsored 10 km walk in 2011.   Please either join in the … Continue reading →

We had a committee meeting in March, 2009.  Any members are welcome to come along to any of these meetings, please see our events page for details of upcoming events.

In the summer of 2006 many of our members completed a questionnaire we sent them.  The results were summarised the following year, and presented to porphyria medical experts, and at BPA meetings.  A report of the results can be downloaded here.