Category Archives: Past events

Autumn Conference and AGM 2016 – Peterborough – 1 October

Our Autumn Conference and AGM will be held at the Holiday Inn Peterborough West on Saturday 1st October 2016 (10am to 4pm), with the support of Dr Stein and the team from Kings College Hospital London. Again, we will have … Continue reading

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Open day 2016 – Salford

Our Open Day will be held on Friday 8th July 2016 (10am to 4pm) at Salford Royal Hospital. We will have some updates on developments with regards to access to SCENESSE (a potential treatment for EPP) and the Alnylam research … Continue reading

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Custom Van Show: 12-13 September 2015

For the second year running, Ray Lancaster and Jenny Coombs are organising the Revolution Custom & Classic Van Club Show in Skegness, to raise funds for the BPA. Van owners and enthusiasts will be coming from all over the country … Continue reading

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International Porphyria Patient Day in Düsseldorf, Germany, on Sunday 13 September

The 4th International Patient Day will be held on Sunday 13 September at the City Hostel in Düsseldorf, Germany. The main theme of the day will be new therapies for the cutaneous and acute porphyrias. The main International Porphyrins and … Continue reading

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Autumn Conference and AGM in London, on Saturday 24 October 2015

Our Autumn Conference and AGM will be hosted by Dr Sarkany, who is one of the most experienced dermatologists on EPP and other skin porphyrias in the UK.  It will be at Guys and St Thomas’ York Road Education Centre … Continue reading

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Open Day in Leeds, on Friday 29 May 2015

On Friday 29 May we will be holding our Open Day in Leeds. The meeting is free to attend and will be held at Devonshire Hall which is one of the University of Leeds’ city centre campuses. The programme will … Continue reading

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New Job Role for the BPA

The British Porphyria Association is employing a part-time administrator. We are looking for someone who will work on a contract (self-employed) basis from home, for an average of six hours a week. The successful applicant will either have knowledge of … Continue reading

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Ride London-Surrey 100 – 10 August 2014

We are pleased to announce that we have filled our two places for the annual Ride London-Surrey 100.  Ian Burrell and Dougal Betts will be training hard over the coming months in order to be fully prepared to ride 100 … Continue reading

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Custom Van Show: Weekend 13/14 September 2014

Ray Lancaster, one of our loyal BPA members and porphyria sufferers, has organised the Revolution Custom & Classic Van Club Show in Skegness, to raise awareness and funds for the BPA. Van owners and enthusiasts will be coming from all … Continue reading

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Autumn Conference and AGM – 6 September 2014

Our BPA Autumn Conference and AGM will be held in the Mayo Building at Salford Royal Hospital, Salford on Saturday 6 September 2014 and will run from 10:45am to 3:15pm. The meeting is free to attend. The programme will start … Continue reading

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