-
Archives
- Ride London-Surrey 100 – August 2013
- South Downs Trekathon
- International Patient Conference
- Kings College Open Day
- Autumn Conference 2013
- Rachel and Kevin doing an Ironman
- Matthew Binns – The 3 Big Ones – Fundraising in 2012
- Running for Porphyria research
- Open Committee Meeting
- Autumn Conference 2012 in Cambridge
- Darnley Trail Challenge Fundraising Walk – Sunday 4th September 2011
- Hospital Open Day – June 2012
- Viewing this site
- National Porphyria Week
- AGM and Autumn Conference – 10 Sept 2011
- International Patient Support Conference
- International Patient Support Conference
- Open Committee meeting
- BPA calendar
- Meeting in Cambridge
- Autumn Conference and AGM 2010
- Charity walk
- Our first meeting in Scotland
- Autumn Conference and AGM 2009
- Committee meeting
- Hospital Open Day June 2008
- Open Committee Meeting June 2008
- Autumn Conference and AGM 2008
- Warning of Scam
- Report on Questionnaire
- Porphyria questionnaire
- AGM and half-day conference
- Open committee meeting Aug 2007
- OPEN DAY at Kings College Hospital
- Open committee meeting Jan 2007
- International Porphyria meeting in Rome
- International Porphyria meeting in Rome
- AGM, 2006
- Open committee meeting June 2006
- OPEN DAY at Cardiff Hospital
- BPA’s new logo
- Open committee meeting Feb 2006
- AGM, 2005
- Open Day at Hope Hospital , June 1st 2005
- Open committee meeting June 2005
- Porphyria Awareness Day
- Open committee meeting March 2005
- AGM, 2004
- Notice of AGM, 2004
- Climb Conference, 16th April
Years
- April 2013 (1)
- March 2013 (1)
- December 2012 (3)
- June 2012 (1)
- May 2012 (1)
- February 2012 (1)
- December 2011 (2)
- May 2011 (5)
- March 2011 (1)
- January 2011 (4)
- October 2010 (1)
- January 2010 (1)
- March 2009 (1)
- January 2009 (2)
- June 2008 (4)
- March 2008 (2)
- October 2007 (1)
- August 2007 (1)
- June 2007 (1)
- January 2007 (1)
- November 2006 (2)
- October 2006 (1)
- June 2006 (2)
- April 2006 (1)
- February 2006 (1)
- October 2005 (1)
- June 2005 (2)
- May 2005 (1)
- March 2005 (1)
- November 2004 (1)
- October 2004 (1)
- March 2004 (1)
Monthly Archives: January 2011
International Patient Support Conference
The British Porphyria Association (BPA) organised an International Patient Day which was held on Thursday 14 April 2011. The day ran from 0900 to 1530 and was held at The ATRiuM in Cardiff. The patient day included clinical presentations from doctors, patient experience … Continue reading
Posted in Conferences, News
Open Committee meeting
We held an open committee meeting in Manchester, at the NOWGEN centre, on Saturday afternoon, 19th March. Any members are welcome to come and talk to the committee at any of these events. If you want to come, email or … Continue reading
Posted in News
BPA calendar
We have produced a BPA calendar for 2011. As announced in our newsletter, we held a competition for photos for this calendar. It can be obtained by writing to Karen Harris – address below, or email helpline@porphyria.org.uk. The cost is … Continue reading
Posted in News
Meeting in Cambridge
We held a conference at Sydney Sussex College in Cambridge on 12th June, 2010. There were talks by porphyria experts from Addenbrookes Hospital, a question and answer session, and a chance to meet both the experts and other porphyria sufferers.
Posted in Past Events