helpline: 0300 30 200 30
helpline@porphyria.org.uk

Blog

International Patient Conference

In May 2013, there is an International Patient Conference in Lucerne, Switzerland.  Quite a number of you came to the previous international patient day last year in Cardiff. We had very positive feedback about it.  If you fancy a holiday in Switzerland, why not come to this one-day conference, on 18th May 2013.  It will include talks by doctors on the latest information on porphyria, and talks by patients and patient organisations.

Read more

Kings College Open Day

We are having a porphyria Open Day at Kings College Hospital, London, on Saturday 8th June 2013.  Our Open Days are always popular; and as usual this event will include talks on porphyria by clinicians for Kings, and also a tour of the porphyria testing laboratory

Read more

Autumn Conference 2013

Our Autumn Conference in 2013 will be in Scotland for the first time.  It will be in Dundee, on Saturday 21st September 2013.  This will include our brief AGM, but with much more time given to talks by Scottish clinicians, and porphyria patients.

Read more