On Saturday 7 June 2014 we held our Open Day at the University Hospital of Wales, Cardiff. The meeting was a great success and patients get very involved in the discussions. The talks included a presentations from patients, a clinical psychologist, talks on acute and cutaneous porphyrias from porphyria specialists, as well as a talk on some new research. There was a question and answer session, and time for informal chats with other porphyria patients and their families. A virtual tour of the laboratories, showed where the tests for porphyria are conducted.