We are having a hospital open day at Salford Royal Hospital (traditionally known as Hope Hospital) on Saturday 23rd June, 2012. The hospital is a few miles west of the centre of Manchester, easily reached by bus and tram.
It will be a joint educational meeting for patients, specialists and other healthcare professionals who deal with various aspects of the porphyrias to increase awareness and understanding. It will include talks from clinicians and people with porphyria.
After lunch (provided) we will split into two groups – one with patients with acute porphyrias (AIP, VP and HCP), and the other with those with skin porphyrias (EPP, PCT, etc.). There will be a tour of the pathology laboratories where porphyria patient samples are tested, to confirm their porphyria, find the type of porphyria, or confirm that they are having an attack. Also the skin porphyria group will discuss advice on protecting the skin from light
It will start at about 10.30 am, and finish mid-afternoon.
If you want to come, let us know. We need to know names and numbers both for catering, and also for hospital security.
It will start at about 10.30 am, and finish mid-afternoon.
After lunch (provided) we will split into two groups – one with patients with acute porphyrias (AIP, VP and HCP), and the other with those with skin porphyrias (EPP, PCT, etc.). There will be a tour of the pathology laboratories where porphyria patient samples are tested, to confirm their porphyria, find the type of porphyria, or confirm that they are having an attack. Also the skin porphyria group will discuss advice on protecting the skin from light