Factsheets
These factsheets are designed to provide accessible, practical information for people affected by porphyria, their families and healthcare professionals.
All porphyrias
About the porphyrias and the BPA
Acute porphyrias
Hormone Replacement Therapy (HRT) in the acute porphyrias
We are delighted to launch a new series of factsheets based on the Guidelines for the management of acute porphyria: recommendations from the International Porphyria Network which were recently published in The Lancet Haematology. IPNET is an international network of experts working together to improve healthcare services for porphyria patients. The full guidelines can be obatined by contacting the BPA on helpline@porphyria.org.uk
Weight loss in the acute porphyrias
Skin porphyrias
Sunscreens update – Summer 2024
Hormone Replacement Therapy (HRT) in porphyria cutanea tarda (PCT)
Factsheets produced by other organisations
Light Sensitivity: Employer’s Information Card
