CLIMB – Children Living with Metabolic disorders – covers unusual metabolic problems, including porphyria. They helped start up the British Porphyria Association.
CLIMB is committed to fighting metabolic diseases through research, awareness and support. They are the UK’s only dedicated organisation to provide advice, information and support on all metabolic diseases to children, young adults, families, carers and professionals. Their aim is to ensure the best possible quality of life for children, young people and families affected by metabolic disease and alleviate their suffering with the ultimate aim of prevention and cure.
They can be contacted on 0800 652 3181 or at www.climb.org.uk