After discussions with the American Porphyria Foundation (APF) and the International Porphyria Patients Network (IPPN), we are joining them in holding an International Porphyria Awareness Week (IPAW) from 22 to 29 April 2017. We are planning on suggesting a number of fundraising and awareness initiatives that you might like to become involved in. More details of these will be circulated in early 2017 via our website and Facebook page, as they become available.
We feel this will help strengthen the impact that we can have, not only on a local level, but on a global level too.
We will endeavour to highlight the plight of those struggling with this condition using the media, our member’s personal stories, fundraising events, conferences, and any other means that we can.
Members like YOU, can help us to do this! If you have any ideas for awareness, publicity or fundraising that you would like to explore with the BPA, please do not hesitate to get in touch.
Money raised can be paid through Just Giving or cheques should be sent, with details of your event, to The Treasurer, British Porphyria Association, Rothlea House, 7-8 Quarry Lane, Butterknowle, Bishop Auckland, DL13 5LL.