On the following pages you will find a series of links to our various publications.

To our members we provide a twice-yearly newsletter to keep them up to date with the latest developments in the field of research into porphyria. We also keep members updated on events to be held in the near future. Our archives are available for you to download as PDF files.

To become a member, please go to the membership and donations page.

Also downloadable are our handy patient information leaflets – you may want to keep copies of these with you, especially when travelling or likely to be seeing a new doctor or medical professional.