Events and news

On the following pages you will find a series of links to our various events, and a history of previous events.

We usually arrange two main open meetings a year for our members. These are to help members understand their porphyria, and to enable them to meet other people who are also living with porphyria.
We also keep members updated with the latest developments porphyria.

To become a member, please go to the membership and donations page.