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Conferences and events

2017 Autumn Conference and AGM: Cardiff

Our 2017 Autumn Conference and AGM will be held at the Holiday Inn Cardiff North M4, J32 on Saturday 7th October 2017 (9.30 am to 4.15 pm), with the support of Dr Badminton and the team from the University Hospital of Wales, Cardiff. As always, we will have updates on Clinuvel and Alnylam as well as various other talks from doctors, nurses and patients about living with porphyria. There will be plenty of opportunities to talk with others affected by porphyria, as we plan to group sessions together to allow a specific cutaneous section and an acute section, meaning that people will be able to use a breakout room for informal discussions, instead of attending talks that may not be as relevant to them.

Please let us know if you would be interested in attending as, based on the popularity of our 2016 events, we expect places to fill quickly. Please forward the names of anyone wishing to attend with you to: or call 0300 30 200 30 to confirm your attendance.  The BPA will send further information to those interested a few weeks before the actual event.

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International Patient Day – Bordeaux – 25 June 2017

Every two years, an International Patient Day is held in conjunction with the Porphyrins and Porphyrias Congress, which brings together porphyria experts and researchers from around the World. The Patient Day, in turn, brings together patients and patient organisations from around the world. We are able to announce that the next International Patient Day is now scheduled. It will be held in the beautiful city of Bordeaux on the west coast of France, on Sunday, 25th June 2017. Further details will follow as soon as we have them.


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