Contact us

Please contact us on our email helpline or telephone number and we’ll do our best to answer your queries and concerns as soon as possible.

Email: helpline@porphyria.org.uk

Our helpline number is 0300 30 200 30.

Calls are most likely to be answered between the hours of 10am and 2pm. The rest of the time there will be an answer phone in operation. Please leave a message and someone will get back to you.

This is not a 24/7 number. If you have an acute attack emergency, please contact the National Acute Porphyria Service (NAPS) 24/7 helpline number: 029 2074 7747.

Our registered address is:
British Porphyria Association
4 Festival Villas
Woodland
County Durham
DL13 5RG

Registered Charity (UK) No.1089609

SEPTEMBER 2025 UPDATE:
We have recently changed our registered address to the above address. While we transition all our documentation to this new address, you may still come across our prior address, which was 136 Devonshire Road, Durham City, DH1 2BL.

Comments or questions are welcome.