CENTRES SPECIALISING IN PORPHYRIA
Argentina
Buenos Aires
Fac. Ciencias Exactas Dept.
Biochemistry
Dr. J. M. Tomio
majo@qb.fcen.uba.ar
Tel: (+54) 011 4576 3361/63
Fax: (+54) 011 4576 3351
Australia
The Australian Porphyria Association
The Nerve Centre,
54 Railway Road, Blackburn,
VIC, 3130, Australia
Tel.: +61 (0)3 9845 2737
Fax: +61 (0)3 9845 2777
SendMail('', 'porphyria', 'mssociety.com.au','lienrouge');
porphyria@mssociety.com.au ,
www.porphyria-australia.org
Nth Adelaide
Women's Children's Hospital
Neil R Babcock
babcockn@wch.sa.gov.au
Tel: (+61) 8 8204 7292
Fax: (+61) 8 8204 7100
Camperdown
Biochemistry Dept.
Royal Prince Alfred Hospital
Dr. Victor Poulos
victor@bioc.rpa.cs.nsw.gov.au
Tel: (+61) 2 9515 8572
Fax: (+61) 2 9515 7931
Archerfield
Porphyria Research Unit,
The University of Queensland
Dr. Michael Moore
m.moore@mailbox.uq.edu.au
www.uq.edu.au/porphyria
Tel: (+61) 732 74 9001
Fax: (+61) 732 74 9003
Austria
Graz
Medizinische Klinik Karl-Franzens-Universitat
Prof. Kreijs
Dr. Hinterleitner
Tel: (+43) 316 385 2863
Innsbruck
Universitatsklinik Innsbruck
Dr. Speiss
Tel: (+43) 512 504 4173
Canada
Ottawa
Ottawa General Hospital
Dr. T. Hindmarsh
jhindmarsh@ottawahospital.on.ca
Tel: (+1) 613 737 8312
Fax: (+1) 613 737 8315
The Canadian Porphyria Foundation has a useful web-site: www.cpf-inc.ca
Czech Rep.
Prague
Laboratory of Porphyria Metabolism,
1st Medical Faculty Charles University
Dr. P. Martasek
pmartasek@hotmail.com
Tel: (+420) 2 249 104 78
Denmark
Viborg
Dept. Clin. Biochem.
Axel Brock
axel.brock@vk-s.dk
Tel: (+45) 8927 2042
Fax: (+45) 8927 3462
Finland
Helsinki
University Central Hospital of Helsinky,
Department of Medicine
Dr Pertti Mustajoki
Dr. Raili Kauppinen
pertti.mustajoki@pine.pp.fi
raili.kauppinen@hus.fi
Tel: (+3589) 47 17 2324
France
Colombes
Centre Francais des Porphyries,
Hopital Louis Mourier
Prof. JC. Deybach, Dr H. Puy
jc.deybach@wanadoo.com.fr
www.porphyries.com.fr
Tel: (+33) 01 47 60 60 17
Fax: (+33) 01 47 60 67 03
Germany
Marburg
Prof. Manfred Doss
Tel: (+49) 01786372200
Dusseldorf
Hautklinik HHU-Dusseldorf
Dr. K. Lang
kerstin.lang@med.uni-duesseldorf.de
Tel: (+49) 0211 811 8327
Fax: (+49) 0211 811 7316
Munchen
Hem-Onc-Center
Prof. P.E. Petrides
petrides@onkologiemuenchen.de
Tel: (+49) 89 229009
(+49) 2166 8780
Fax: (+49) 89 229448
Dresden
Krankenhaus Dreseden- Friedrichstadt
Dr. Erich Kostler
Tel: (+49) 351 4800
Fax: (+49) 351 4803009
Dobeln Krankenhaus Dobeln
Dr. Ulrich Stoizel
Tel: (+49) 3431 722-0
Fax: (+49) 3431 722-310
Also see Dr. Jorge Frank, Maasticht
Hungary
Szeged
Dept. of Dermatology
University of Szeged
Dr. Ferenc Koszo
kf@derma.szote.u-szeged.hu
Tel: (+36) 62 545 254
Fax: (+36) 62 545 954
Ireland
Dublin
St. James's Hospital
Cindy Darby
Tel: (+353) 1 416 2058
Israel
Petah-Tikua
Rabin Med. Center Beilinson Campus
Prof. Nili Schoenfeld
nilis@netvision.net.il
Tel: (+972) 3 3937 7710
Fax: (+972) 3 937 7710
Italy
Rome
Centro per le Portoroe
Instituto S. Gallicano
Dott. Gianfranco Biolcati
g.biolcati@tin.it
Tel: (+39) 06 52406928
Fax: (+39) 06 5854370
Associazione Malati di Porfiria (AMAPO) -
Ms S. Pavia,
V. Fiume Bianco, 130,
00144 Roma , Italy .
crisava99@libero.it
Associazione Malati di Porfiria AMAPO (ONLUS)
Presidente S. Simona Pavia Sede :
c/o Istituto S.Gallicano Via S. Gallicano ,
25 CAP 00153 Roma , Italy .
amapo@tiscali.it ,
www.amapo.it
Milan
Dipartmento Medicina Interna
Ospedale Maggiore IRCCS MI
Dott. ssa Maria Domenica
maria.cappellini@unimi.it
Tel: (+39) 02 5502 3752 or 3757
(+39) 0347 7885 455
Fax: (+39) 02 5518 0241
Modena
Dipartmento Medicina Interna
Universita di Moderna
Dott. Ezio Ventura
Tel: (+39) 059 4222 658 or 501
Fax: (+39) 059 424 363
Netherlands
Rotterdam
University Hospital of Rotterdam
Prof. Paul Wilson, Dr. Felix de Rooij
wilson@ inw2.azr.nl
Tel: (+31) 10 463 5940
Fax: (+31) 10 463 3268
Maasticht
Afdeling Dermatologie,
Academisch Ziekenhuis Maastricht
Postbus 5800
6202 AZ Maastricht
Dr. Jorge Frank
jorgefrank@yahoo.com
Tel: (+31) 43 3875292
Fax: (+31) 43 3877293
Norway
Bergen
Haukeland University Hospital
Dr. Sverre Sandberg
porfyri@haukeland.no
Tel: (+47) 5597 3170
Fax: (+47) 5597 3115
Poland
Warszawa
Porphyria Center Insitute of Hermatology and Blood Transfusion
Witold Kucharski M.D.
drkucharski@post.pl
Tel: (+48) 22 849 3651 ext. 222
Fax: (+48) 22 849 8506
Portugal
Lisboa
Hospital de Santa Maria
Dr. Palma Carlos
Tel: (+35) 1217805000
Fax: (+35) 1217805623
S. Africa
Cape Town
Lennox Eales Porphyria Unit Liver Centre,
University of Cape Town
Profs Meissner & Hift
pete@liver.uct.ac.za
web.uct.ac.za/depts/porphyria/
Tel:(+27) 021 4066332 / 6206
Fax: (+27) 021 4486815
Spain
The Spanish Porphyria Association,
Mrs Rosario Fernandez
Arcangel San Rafael , 12, 6°, 23
41010 Sevilla.
porfiria.es@terra.es
Tel/Fax : +34 95 434 00 71
Barcelona
Hospital Clinic i Provincial de Barcelona
Dra Carmen Herrero
cherrero@medica.ub.es
Tel: (+34) 932 275 400 ext. 2422
Fax: (+34) 932275438
Madrid
University Hospital "la Paz"
Dra Constanza Solis
jmolano@hulp.insalud.es
Tel: (+34) 91 727 7011
Fax: (+34) 91 727 7033
Sweden
Stockholm
Huddinge University Hospital
Pauline Harper MD, PhD
pauline.harper@cmms.hs.sll.se
Tel: (+46) 858 582 787
Fax: (+46) 858 582760
Switzerland
Basel
University Clinics Kantonsspital
URS A. Meyer, M.D.
urs-A.Meyer@unibas.ch
Tel: +(41) 61 267 2220
Fax: (+41) 61 267 22 08
Zurich
Stadtspital Triemli Zurich
Prof. E Minder
elisabeth.minder@triemli.stzh.ch
Tel: (+41) 1 466 23 20
(+41) 1 466 23 22
Fax: (+41) 1 466 27 44
U.K.
See top of page
U.S.A.
The American Porphyria Foundation has a very extensive web-site,
including a section for medical staff: www.porphyriafoundation.com
Galveston TX
University of Texas,
Medical Branch
Karl E. Anderson
karl.anderson@utmb.edu
Tel: (+1) 409 772 4661
Fax: (+1) 409 772 6287
Tampa FL
University of South Florida
Dr. Gloria C Ferreira
gferreir@hsc.usf.edu
Tel: (+1) 813 974 5797
Fax: (+1) 813 974 0504
Worcester MA
University of Massachusetts
CTR for disorders of Iron and Porphyrin Metabolism
Herbert Bonkovsky
bonkovsky@ummhc.org
Tel: (+1) 508 856 3749
Birmingham, Alabama
Liver Center - Univ. Of Alabama
Joseph Bloomer, MD
jbloomer@uab.edu
Tel: (+1) 205 975 9699
Fax: (+1) 205 975 9777
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