helpline: 0300 30 200 30
helpline@porphyria.org.uk

Awareness

  • 16 Aug 2020

    Active 21: Summer 2020

    The Active 21 campaign hopes to bring the wider porphyria community together (including patients, friends and families) to be more…
  • 19 Sep 2020

    CONNECT 2020: Online… Live… Together

    19 September 2020: 09:30 – 17:00 We are very excited to invite you to our first ever ONLINE and LIVE…