Raise awareness, make a difference

Fundraising events

Challenge yourself, help raise awareness of the porphyrias and support those whose lives are affected by joining an organised event.

We regularly secure entries to the UK’s leading mass participation events.

Porphyria information days

Regular opportunities for patients, families and friends to find out the latest information on the porphyrias.

Organised in collaboration with UK centres of expertiseour Open Days and Conferences enable you to meet other patients, and bring you together with leading experts.

Ways to donate

The BPA is run largely by a team of unpaid volunteers. Our capacity to raise awareness of the porphyrias and support those affected is heavily reliant on charitable donations. We appreciate your contribution, no matter what the size.

See all the ways you can donate to the BPA and learn about becoming a member.

Upcoming Events