BPA Festival - 20th Anniversary

BPA Festival: Celebrating 20 YEARS of The British Porphyria Association

Join us at the fantastic Science and Industry Museum in Manchester for the first ever porphyria festival designed especially for you!

Our BPA festival will comprise three main stages hosting a variety of sessions and an exceptional line-up of speakers, so that you can design your personal agenda for the day! Whether that involves understanding strategies to help you gain control of your condition, listening to a wealth of personal stories and experiences or focusing on connecting with others, our 20th anniversary event is designed with you at the heart.

Main set list/programme
Child and young adult set list/programme

We’ve got three main stages to choose from:

UNDERSTAND

This stage focuses on the science of porphyria, management of symptoms and treatments for porphyria, as well as providing updates in the field of research. This stage is suitable for patients who want a deeper understanding of their porphyria, or for medical professionals.

CONNECT

This stage is patient centred and will focus on patients and their personal stories, interviews and interactive discussions. Suitable for all, this stage aims to help you to realise that you’re not alone. Come along to create vital connections with others.

TAKE CONTROL

This stage focuses on mental health and well-being. It also focuses on ways to help you or your family take control and get the best out of life. Whether that’s finding new activities, looking at alternative therapies or learning how to relax, this is for you.

As always, there’ll be plenty of opportunities to connect with other people with porphyria. We’ve also got a RELAX zone and a CHILDCARE room. So you can get involved without being distracted.

Contact festival@porphyria.org.uk for any questions about our BPA festival.

Register for your FREE tickets at Eventbrite.com.

BPA 20th Anniversary Flyer

Festival update: July 2019

We’ve just secured a live performance from the amazing Joel Gardner: https://youtu.be/1gSjLMIDBZM

Plus, lots of exciting new sessions now added to our festival event. Our children’s and young people’s programmes are nearly finalised. What can you expect?

  • To gain insights and experiences from others with porphyria in interactive and informal sessions targeted at teens and young adults. Subjects include:
    • School trips and moving schools
    • Travel and sport with EPP
    • Mental well-being and growing up with EPP
  • Great day-time sessions geared specifically at young children
    • A chance to break down shyness and isolation and build relationships with others affected by porphyria by taking part in informal and fun challenges
    • A chance to try kid’s yoga and martial arts
  • Visits to the Science and Industry Museum downstairs
  • Workshops for all ages
    • Understanding light: a look at different types of light and how much comes through fabric and windows etc.
    • Pain: the use of different mediums to express and explain pain in a collage, poster or model
  • Mindfulness and relaxation techniques for all ages