Our 20th Anniversary Festival took place on 14 October 2019. We’re proud to be able to share some amazing footage from our immersive and exciting event, which brought together 169 people who spent the day and evening talking about porphyria.
The British Porphyria Association (BPA) is a national charity for people with porphyria.
It was set up in 1999 by a group of patients and relatives who felt isolated and had experienced difficulties due to their porphyria, and had found there to be a general lack of understanding and information available.
The BPA became a registered charity in 2001, and is run largely by a committee of volunteers (supported by a paid administrator for six hours per week).